To tell or not to tell others about your stoma

Clare Mee
Clare Mee
There have been a few times when my husband has had to say hang on isn’t that a bit too much? Some things can be kept private, and I have come to my senses and left it out.

I personally thought it would be better for me to tell everyone I knew about my surgery. I have been extremely open, and for me I am happy to do that. But not everyone is the same and I know people with a stoma who don’t tell anyone other than close family.

For me, it helped with my healing process, physically and mentally. I decided to write a blog and realised pretty quickly that people wanted to know all about it, and I mean the hard stuff. What does it look like? How do you go to the toilet?  etc etc.

So, I told them, and showed them my stoma, and I think that showing the world my scars and stoma has shown them that life does go on, even when things go terribly wrong. I have things still going wrong and it helps me to tell people. Others may be dealing with the same or similar and think they are alone, I aim to let them know that they are not alone. I am also there to show people what it is like to live with these issues on a daily basis.

I felt that work needed to know because of some issues I have, and the support I might need. Ok, maybe EVERYONE at work didn’t need to know, but hey, this is me talking, I can’t keep it to myself, and it shows through my blog posts because they are open to everyone.

I have never had a bad comment about being so open, people may think it sometimes, but I have never felt any bad vibes. Some of my posts can be a bit shocking and graphic, but again I want everyone to know rather than think the wrong information. There have been a few times when my husband has had to say hang on isn’t that a bit too much? Some things can be kept private, and I have come to my senses and left it out. ( For example, a picture of my Barbie butt scar straight after surgery, I know, I know, maybe TMI).

However you cope with your own story is what's right for you. If you don’t want anyone to know at all, then that’s ok too. We aren’t all the same and this is just my way of coping with an unusual way of life.