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Does anyone have any tips and tricks on how you would explain having an ostomy to someone who isn't an ostomate?
Hi all,
as some of you know I have a stoma of (38 years and a fistula of 6 years, the latter being caused by surgical complications.
I have been feeling very down of late, with very black thoughts as the fistula is just a nightmare to manage and totally…
Since my ostomy surgery in 2011, I’ve only been camping once. And it was more of “glamping”. I slept in a tent but there was a bathroom with running water not too far away. Even with my ostomy bag, I am always aware of where the nearest…
I have a non-surgical stoma. It was the result of an operation to remove my gallbladder that went wrong in February 2020 that perforated my bowel and put me in hospital with sepsis for months. I now have an ileostomy in the middle of an open flesh wound…
I'm 5mths post op & I had to have rectum removed & half my abs used to make a flap. I have an end ostomy. My question is, where has people got their underwear from & what is the best support belt to get. Oh does the belt sit on the bag ? Does…
Amy has discussed her recovery from stoma forming surgery and how she feels about having a stoma nearly 10 years later.
How was your recovery from stoma surgery, how do you feel now? Let us know in the comments!
I have had a stoma (ilostomy) for nearly two years, had problems with bags leaks,, odours etc, but have it well sorted now, if you are having problems in any way, I can help with my experience I hope, love these sites, gained so much information myself…
Straight after stoma surgery is a very difficult and conflicting time, it might have saved your life, or cured you, or made things much better in the long term, but it has also changed your body and your self esteem.
Accepting what has happened can be…
Has anyone gone for a massage at a spa? Did you find it comfortable with your stoma?
Hi, has anyone had large hard white lumps come out of stoma please?
What advice would you give to a new ostomate for their first trips out of the house?
What were the major milestones that you were excited to hit on your first year of recovery? First trip out, first swim, first time being intimate, going back to work? What made you feel like you were making good progress?
Catch up on our live session from our Clinical Advisor, Marie McGrogan who was joined by special guest, Bronagh Starrs, Psychotherapist, and Luciana Podschun, an ostomate for 5 years.
They discussed the feelings of loss of control following stoma formation…
Who has gone on a big rollercoaster? Did you have any problems with your pouch when you went upside down?
Good day so I'm fairly new 9 months with a Transverse Colostomy and I was wondering who else has this type. The transverse colostomy is located approximately 2 inches below my sternum directly in the middle of the chest. I'm having several types of problem…
Yes, 50 years old and happy, that’s how I feel. There’s nothing wrong, unless you wish you were 25. It feels like a big milestone. It’s not just a big birthday, but a big moment in my wonderful life. On May 12th, I was so thrilled to be given the gift…
Some of our bloggers have shared they story about dating and intimacy with a stoma, and we’d love to hear more of your stories. What has been your experience of dating with a stoma?
Do you know how to use all the items in your pouch box?
I've made a short video on what each items is and how to use them!
Do you feel you were well prepared for your surgery? What was the most beneficial information you were given?
Hi everyone! I've recently joined A Bigger Life as a blogger and I thought the perfect way to kickstart this journey would be to introduce myself and tell you my stoma story!
You can hear all about my journey with Crohn's below.
Has social media influenced your experience of living with a stoma. Is it for better or worse?
I had my stoma created back in 2008. Even back then, although it was a relatively common operation, there was not much information available.
Before I committed to the operation, I spent a lot of time initially talking with the stoma nurses at my local…