I have a double loop ileostomy (July 2015). Since day one my lower stoma has been retracted, so I have always worn a convex bag. Recently, I have noticed a small bump to the left of my abdomen and quite a lot of weakness on the right hand side.
Previously, my stoma nurse advised that surgery was the only option. I didn't want to jump for more surgery as I have fragile skin that does not heal well.
Should I be wearing a flat baseplate bag in order to reduce more weakness? I do core stoma exercises but no improvement. I have a lot of nerve impairment due to problems with spine.
Any advice would be very helpful.
Sorry for the delayed reply. Thanks for your message.
So you have noticed a bump to the left of your abdomen? Is it there when you lie down?? I would advise you to feel the bump when upright and then low down into a comfortable position whilst relaxing the muscles. If it disappears I would suggest that it is some herniation.
Your stoma nurse had advised that surgery was the only option for the retracted stoma or the bump?? Sorry I just want to be clear.
A lot of the time surgeons do not want to have people undergo surgery if they are in the high risk category or have issues with poor healing/repair in the past but this has to be weighed up with pro’s v cons.
In relation to altering to a flat baseplate -I don’t feel that this would impact your hernia/bump/if that’s what your asking about. Ensure it is soft with no risks of skin breaks.
I would be more focused on a suitable pouch/correct fit that ensures to help If you have any marks or worry about not feeling damage due to nerve damage, check skin regularly and ensure it is a soft convex.
Nerve damage is very common and can improve over time post op but in your case it remains, so watch skin carefully, continue with core exercises and have a word with your surgeon re weighing up risks etc. I hope I have answered your question, please get back to me with anything else.
Take care, Louise